By: ayet

ayet — Tue, 28 Oct 2008 08:22:41 +0000

hello, my son is a G6pd carrier. we love him so much even her ate give extra care for him. he’s really special

By: Kris

Kris — Wed, 22 Oct 2008 21:57:39 +0000

My story is very complicated and painful. I have a son who is microcephalic, has severe epilepsy, and developmentally delayed. All of this stemmed from a 1 in a 1/4 million chance of happening. I did not know that I had HSV-2. During my pregnancy with my son the virus passed through the placenta and attacked his body. The day he was born everything was thought to be fine then that night he threw up blood. The closest way I can describe the feeling in that moment when my tiny baby just turned his head and this blood just came out all over the incubator is to say it felt like someone punched me in the stomach and every part of my being was going to turn inside out. I cryed and prayed endlessly. It took a week for the cultures to come back to reveal the diagnosis while in the mean time I sat hour after hour singing to my baby boy who had tubes going and coming out of every entrance and exit in his body. He was given platelet and blood transfusions one right after another. Then when they finally determined what caused the problem they told me that the virus must have passed through attacked his body and caused him to have zero clotting factors in his blood. So what would normally be a small blood vessel in his stomach to rupture and then clot off and be no big deal could had made him bleed to death. My son is a miracle and I thank God Almighty for that. Every step of the way the doctors continously said they couldn’t believe how hard he was fighting and winning. Yes he has a long road ahead of him-ahead of us but, I know God blessed me and will continue too if I just keep my faith. Don’t get me wrong it has been a hard road and I have had so many questions and doubts about everything and it is still very hard. I cry alot still for I know that one day and that day will come when I will hold my sweet baby and he’ll take his last breath and God will take him back to heaven. But until then and even after I will Love him with every ounce of my being.

By: Robyn

Robyn — Thu, 16 Oct 2008 12:02:28 +0000

I have a son who has many medical and other problems. Autism, CP, Lung disease. heart disease, asthma, scoliosis, apraxia, OCD, hyperaccusis, anxiety. He will only be 8 in March of 09. Things at our house can be very stressful at times. But we always let our son know how much we love him, and would not change anything about him for anything!!!!!

By: Nan

Nan — Sat, 16 Aug 2008 17:24:41 +0000

Hello-I have 2 special need children-both w/severe developmental delay/C.P and one w/a multiple seizure disorder.They truly are special children <3

By: Leah LaBrosciano

Leah LaBrosciano — Tue, 05 Aug 2008 19:10:27 +0000

I have an 11 year old daughter with cerebral palsy and an undiagnosed genetic syndrome.

Comments on: Seeking Parents with Special Needs Kids

By: ayet

By: Kris

By: Robyn

By: Nan

By: Leah LaBrosciano