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There are currently 22 responses to “Seeking Parents with Special Needs Kids”

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1. 1 On July 27th, 2008, Beverly said:

   I have 3 children & each one has food allergies. Peanut & dairy are the only common allergies that they have. My son has Celiac Disease & Auditory Processing.

   Life at my house can be challenge on most days.

2. 2 On August 5th, 2008, Leah LaBrosciano said:

   I have an 11 year old daughter with cerebral palsy and an undiagnosed genetic syndrome.

3. 3 On August 16th, 2008, Nan said:

   Hello-I have 2 special need children-both w/severe developmental delay/C.P and one w/a multiple seizure disorder.They truly are special children <3

4. 4 On October 16th, 2008, Robyn said:

   I have a son who has many medical and other problems. Autism, CP, Lung disease. heart disease, asthma, scoliosis, apraxia, OCD, hyperaccusis, anxiety. He will only be 8 in March of 09. Things at our house can be very stressful at times. But we always let our son know how much we love him, and would not change anything about him for anything!!!!!

5. 5 On October 22nd, 2008, Kris said:

   My story is very complicated and painful. I have a son who is microcephalic, has severe epilepsy, and developmentally delayed. All of this stemmed from a 1 in a 1/4 million chance of happening. I did not know that I had HSV-2. During my pregnancy with my son the virus passed through the placenta and attacked his body. The day he was born everything was thought to be fine then that night he threw up blood. The closest way I can describe the feeling in that moment when my tiny baby just turned his head and this blood just came out all over the incubator is to say it felt like someone punched me in the stomach and every part of my being was going to turn inside out. I cryed and prayed endlessly. It took a week for the cultures to come back to reveal the diagnosis while in the mean time I sat hour after hour singing to my baby boy who had tubes going and coming out of every entrance and exit in his body. He was given platelet and blood transfusions one right after another. Then when they finally determined what caused the problem they told me that the virus must have passed through attacked his body and caused him to have zero clotting factors in his blood. So what would normally be a small blood vessel in his stomach to rupture and then clot off and be no big deal could had made him bleed to death. My son is a miracle and I thank God Almighty for that. Every step of the way the doctors continously said they couldn’t believe how hard he was fighting and winning. Yes he has a long road ahead of him-ahead of us but, I know God blessed me and will continue too if I just keep my faith. Don’t get me wrong it has been a hard road and I have had so many questions and doubts about everything and it is still very hard. I cry alot still for I know that one day and that day will come when I will hold my sweet baby and he’ll take his last breath and God will take him back to heaven. But until then and even after I will Love him with every ounce of my being.

6. 6 On October 28th, 2008, ayet said:

   hello, my son is a G6pd carrier. we love him so much even her ate give extra care for him. he’s really special

7. 7 On December 6th, 2008, Kay said:

   Both of my boys (stepsons, although we dont use that word in our house) have ADHD. The oldest,D. was having so much trouble in school when I first met his Dad, that he had to repeat KINDERGARTEN. I suggested the doctor, and when we took him in, the doctor told us he had one of the most extreme cases he had ever seen. Of course, the boys’ mother was a drug addict, which was why my husband got custody. The youngest, M. was diagnosed just two years ago, when he went into school. His case isnt as bad as D’s, but there was no way he was going to sit still in class. They cant even sit still long enough to watch a 30 minute show on television.
   We’ve been a family for five years now (the boys were 5 and 2 when I got them) and everyone says they are different children from before I was around. I give most of the credit to the doctors…but children with ADHD need a different kind of discipline, so I guess it does make me kind of proud that they have come so far.

8. 8 On December 10th, 2008, Demetria Jones said:

   I have two boys that are sprcial needs. One has digeorge syndrome with a pacemake and he is bipolar and mmr. my other son has gorlin syndrome I love them so much would not trade them for the world.

9. 9 On December 10th, 2008, nina holmes said:

   I have a 15 year old daughter who is Autistic and mentally retarded. She is non verbal and requires constant supervision. I am a single part with hardly no help. I also have a typical 13 yr old son who has reaaly dealt with the situation pretty well.

10. 10 On February 2nd, 2009, Kelly said:

    I have an 18 yr old son with multiple disabilities. He was born premature and had a grade IV stroke at 2 days old. It has been a wild roller coaster ride with many ups and downs since his birth. I was forced to put him on hospice just recently for pain control. He is no longer able to attend school due to his fragile health. I have become so angry with the medical, educational, state case workers, insurance, and nursing registry personel lately and wonder if I am the only one. I love my child so much but have 3 other children to love and care for also. Many family members, etc. do not understand how difficult it is.

11. 11 On February 4th, 2009, JPM said:

    I have a 3 year old son named “Gavin” who is severely developmentally delayed. He has not said a word, but continues to babble. He has exteme low muscle tone and poor fine and gross motor skills. It has been such a painful road as we have done everything so far. My son falls in a very “gray category” as doctors cannoy explain his developmental delay. They have ruled out autism because of his excellent eye contact and social skills with adults. Gavin is very good boy. We have not experienced any tantrums or resistence with him. He is ver mellow and passive. He is fearful of other kids his age as he fears that they will harm him. He has poor balance coordination and is always falling down. He cannot do any self-help skills. We have done an MRI, chromosome and genetic testing and all came out normal. His neurologist then diagnosed Gavin as having ataxia cerebral palsy. We also did a recent swallow study test and it turns out that he aspirates while he eats. The doctors are recommending a feeding tube for my son in his stomach to prevent pneumonia. I am overwhelmed, stressed, emotional and exhausted as I also recently gave birth to our second baby who is now 8 weeks. Its been a major roller coaster ride.

12. 12 On February 4th, 2009, Jessica said:

    I have a 15 month old who got RSV last winter and ended up on life support. His first hospitalization was 28 days. He has since been on life support 2 more times due to aspirating on his damaged lungs, which has now caused him to have Chronic Lung Disease. He has a G tube and is on oxygen. He is delayed in gross motor and is now starting to have sensory stimulation problems. He has been on steroids for over a year, and on 3 other meds. I

13. 13 On February 9th, 2009, Dennis said:

    All 3 of our children have special needs, Our oldest son has Down’s syndrome and after a wonderful childhood has been battling depression for the past 5 years. Our oldest daughter has non specific autism with an intelligence disability and our youngest son now 20 also has autism with an intelligence disability and Tourette’s. As with all parents of children with special needs our life seems overwhelming and very discouraging a lot of the time. Most people don’t have a clue about our life, but we do have a great group of friends who have supported us and we have worked very hard at not hardening our hearts to life or each other.

14. 14 On February 23rd, 2009, renee said:

    I am a teacher of 35 years of children who have developmental delays. The last 33 years have been spent with 3-5 year old children and their parents. Parents are the best people in the world. Day in and day out, the road is long and full of bumps. Tie a knot in the end of the rope and hang on. Making friends on this list is the best thing that you can do for yourslef.

15. 15 On March 1st, 2009, michelle said:

    I have an 11 year old son with intelligence/slight motor skills disabilities. They say he has mild mental retardation. My problem for him is trying to find people who share my childs type of disability. I look for camps and play groups but seem to run into tons of things geared twoard specific issues such as autisum/adhd he dosen’t fit into those groups. He is very sweet and very qucik, he has speech delays. If you look at him you would never know he was delayed until he speaks, he is like a very young 4 year old. He plays on a baseball team in our area called “miracale league” and does love that. we live in the state of washington and if you know of a blog or resource that I should contact please e-mail me todaysnails@hotmail.com

16. 16 On March 20th, 2009, Jerri said:

    I have a beautiful 7 year old boy with severe autism. He is nonverbal and can be very demanding, but I wouldn’t trade him for anything. He is the most wonderful child. I also work at a preschool for children with disabilities.

17. 17 On April 12th, 2009, Jeri said:

    Wow, how fantastic that the mothers who write about their special children are indeed themsleves very special. My youngest child has language problems and epilepsy that is controled with medicaiton. In many of the blogs, mothers see their special children as blessings. I find that as my son learns to cope with lifes hurdles, he learns to cope with life itself. Thank goodness for the strength that God gives us mothers to cope with the dificulties we watch our children face.

18. 18 On April 12th, 2009, Jessica said:

    If intrested I belong to a blog for parents with special needs. It’s a great place to vent, share, and celebrate! Come Join us! Thruthetulips.blogspot.com

19. 19 On April 14th, 2009, April said:

    I have a 5 year old little boy who is special needs. He is the most precious and loving little boy you will ever meet.He has something called Dyspraxia.It is known as the hidden disability, and also developmental coordination disorder.He also has sensory integration.It’s so hard to watch him struggle so much.I know that god gave me this precious child for a reason, because i never knew that i could love someone so very much.I would never to try to change anything about him.In my eyes he is absolutely perfect!!!

20. 20 On April 17th, 2009, Jenni said:

    Hi, I’ve loved reading the other comments. The children are special gifts from God that teach us so much. I have two daughters, Sierra and Courtney that have a rare genetic brain disorder that still hasn’t been diagnosed. Along with it comes cp, blindess, developemental delay, and a lot of feeding issues. They don’t walk or talk, or really do anything for themselves, but they do giggle and smile and sure know how to love and be loved! They have changed our lives. Our precious Sierra went to Heaven almost three years ago now and we still miss her incredibly, and are enjoying every day we have with Courtney. She is 5 years old, and we are now expecting another baby in June. We can’t wait to meet this new little one, and have lots of people praying for a healthy baby. But God knows what we need and we will love this little one just as much either way. Blessings to all of you!

21. 21 On May 30th, 2009, Ellen said:

    Hi. I’m mom to Max, 6, who has mild cerebral palsy as a result of a stroke at birth (yes, children can have strokes). We were told the worst by doctors, and he may have his challenges, but he is doing amazingly well for himself. He can walk, he has words, he’s bright. Oh, and he is beautiful (really!). He has taught me much about patience, optimism, strength and wonder. You can read his story over on my blog, where I post daily. lovethatmax.blogspot.com

22. 22 On June 4th, 2009, Jocelyn Green said:

    Hello, My son has hypothyroidism, but it is being controlled with medication. I am a published author (see http://www.faithdeployed.com) and I’m working on a new book of devotions written for parents of special needs children. If any of you have a strong faith in God (and you are a Christian) and have been able to learn new things about God or the Bible from your experiences with your special needs child, I would love to hear about it. My email is jocelyn@jocelyngreen.com.

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